Wednesday, August 31, 2011

Autism vs Esme

Autism is developmental disorder that appears in the first 3 years of life, and affects the brain's normal development.

Autism is a physical condition linked to abnormal biology and chemistry in the brain.

Autism is bell-curves, splinter skills, behaviors and variability and abnormality.

Autism is tantrums, disrupted sleep, anxiety and fear.

Autism is a range of complex neurodevelopment disorders, characterized by social impairments, communication difficulties, and restricted, repetitive, and stereotyped patterns of behavior.

Autism is consuming, complex, scary and confusing.

But Autism is not Esme.

Esme is triumphant.

Esme is joy.

Esme is silly.

Esme is a daughter, a sister, a granddaughter, a cousin, a friend.

She is our love, our pride, our joy, our hero.

Esme is not a tragedy.  She does not need your pity or sorrow.  She needs your understanding.  Esme lives with autism, but she is not autism.
See the difference?


  1. Hello Jane,

    Great photos! Esme is lovely.

    I have found your blog while searching on the internet for information on autism. We have some interesting parallels: I too am a mother living in southern Ontario (Toronto) with a gorgeous daughter named Esme who is on the autism spectrum. I think she might be a bit older (now six, she'll be seven in April)but this series of photos reminds me of a set we took a couple of years ago when she hamming it up.

    All of your keywords strike a chord with me, and we've had great success with RDI and basic attachment parenting strategies.

    I would be happy to be in contact more directly if you would find that productive.

    Warm regards,

  2. I am an autistic teen in band (flute) and honors classes. These things may or may not be possible for Esme down the road, and if they aren't, that's okay. Esme is beautiful. She looks like a model in the pictures.